So, yes, I want(ed) to race again. But this is bigger than running a marathon. One of the things that truly sucks about living with a so-called rare disease like sarcoidosis is you're invisible even in the spaces that are designed to help you. In clinical environments, you are a question mark. There are so many presentations, you could be suffering from anything...or nothing. In the world, you don't "look sick." In research environments you do not take precedence.
Even as it seemed elusive, I believed I would realize my dream someday. Well, someday is here.
Heart Disease is the number one cause of death in America, and as is so often the case, women, poor people, and people of color are disproportionately affected. National Heart Month, designated by congressional order in 1963, was created to bring attention to the impact of heart disease, yet the death toll continues to rise and the disparities remain entrenched. The #HFLW mission is to dig up and remove barriers to wellness that allow dis-ease, like cardiovascular dis-ease, to root and flourish in certain populations. Join me this month to talk about it.
For the first time in four years my ICD "delivered therapy," which I discovered days after "the event" when my electrophysiologist's nurse called to ask "if I was okay."
I don’t think there is anyone who doesn’t want to belong to something or somebody. Not ownership belong to but be a part of belong to. Even me. I say even me because I’m a natural, albeit ironic, loner. Ironic because I’m a twin and we make two of five sisters. Ironic still because there [...]
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Talking to myself--especially when it becomes a lot of talk all of a sudden, always tells me there is something I'm trying to work out of my brain and especially out of my body. It's interesting that I haven't been able to run lately, one of my choice ways of working stuff out of my mind and body.
Remember those posts: I am a miracle (that's my story and I'm sticking to it). and Didn't Yesterday say you couldn't yet you did? Mrs. Burke read them and thought they were worth sharing. So I'll be sharing them. On November 16th at 6 on the radio (in my Donna Summer voice). Tune in!
So there we were living our happily ever after when our communication kept getting interrupted. The signal was poor. Eventually our conversations were curt and stilted—we probably secretly blamed each other for the poor signal. Turns out we were both wrong. (As far as doctors have so far surmised. This is idiopathic—without known cause).
The training, racing, and creative process...is a triumph over the physical and psychic conditions just outside the parameters of control which would censor and stilt performance.
darlene anita scott 