So, yes, I want(ed) to race again. But this is bigger than running a marathon. One of the things that truly sucks about living with a so-called rare disease like sarcoidosis is you're invisible even in the spaces that are designed to help you. In clinical environments, you are a question mark. There are so many presentations, you could be suffering from anything...or nothing. In the world, you don't "look sick." In research environments you do not take precedence.
darlene anita scott 